Ore. girl with Down syndrome changing the face of modeling

Posted by on Oct 20, 2015 in Down syndrome, Press & Media | 0 comments

Ore. girl with Down syndrome changing the face of modeling

AURORA, Ore. — Ellie Stafford, 2, is a natural in front of the camera

If there’s one pointed at her, she doesn’t need prompting to flash a big, toothy grin.

Ask her for her modeling pose, and she tilts her head slightly to the side, raises shoulder and brings an index finger to her cheek.

Ellie, of Aurora, also has Down syndrome and she has just begun her modeling career.

Despite Ellie’s charisma and friendliness with the camera, her mother, Tiffany Stafford, never considered her daughter for a career in child modeling.

Watch the Full Interview Here: (more…)

Global Down Syndrome Foundation Adult Medical Care Center Survey

Posted by on Jun 12, 2015 in Down syndrome, Global Down Syndrome Foundation | 0 comments

I am writing to request your participation in an important research project.

The Global Down Syndrome Foundation wishes to gather information in order to open their first Adult Down Syndrome Medical Center, which will be located in Colorado. It will be the first of its kind within a 600-mile radius of Denver.

Global has created a Task Force made up of many renowned medical professionals, activists, and self-advocates from across the country to help them establish this world-class medical center for adults with Down syndrome. Part of the Task Force’s recommendation is to get input from self-advocates and their families. To this end, Global has engaged Catalyst Healthcare Research to conduct a survey regarding the healthcare needs of adults with Down syndrome. (more…)

El Global Down Syndrome Foundation Formulario Del Centro Médico Para Adultos

Posted by on Jun 12, 2015 in Down syndrome, Global Down Syndrome Foundation | 0 comments

Estoy escribiendo para pedirle su participación en un proyecto de investigación importante.

El Global Down Syndrome Foundation desea reunir información para lograr abrir el primer Centro Médico Para Adultos Con Síndrome De Down, el cual será localizado en Colorado. Sera el primero de su tipo en un radio de 600 millas de Denver.

Global ha creado un grupo compuesto de varios médicos profesionales reconocidos, activistas, y abogados de todo el país para ayudar a establecer este Centro Médico de clase mundial, para adultos con síndrome de Down. A recomendación de este grupo, estamos buscando la aportación de personas con síndrome de Down y sus familiares. Con la ayuda de Catalyst Healthcare Research, se ha creado un cuestionario con respecto a los cuidados médicos necesarios para los adultos con síndrome de Down. (more…)

Mom’s Coffee – Vancouver

Posted by on Oct 16, 2014 in Activities, Mom's Coffee, Parents | 0 comments

Mom’s Coffee in Vancouver is open to anyone with a loved one who has Down syndrome. All ages of children welcome!!

Enjoy some coffee, water and some snacks. Make new friends, see old friends, laugh, learn or just simply take a break from Dr. Appointments.

Check out the EVENTS CALENDAR for future Mom’s Coffees!

Megan Schiedler Homecoming Princess

Posted by on Oct 16, 2014 in Activities, Parents | 0 comments

Megan Schiedler Crowned Homecoming Princess
Lake Oswego High School!


Jacob Elected Homecoming Court

Posted by on Oct 16, 2014 in Activities, Press & Media | 0 comments

Jacob Elected to Senior/Junior Homecoming Court at Newberg High School

caitlin jacob pic
We are very excited to tell you that Jacob was elected and announced today during the Pep assembly as the member of the Junior/Senior Homecoming Court. There maybe some responsibilities he may have related to Homecoming.

Here is the spirit week (dress up) schedule:

Tuesday: Dress like a Tourist
Wednesday: Nothing
Thursday: Dress like a Teacher/ Teacher dress like students
Friday: School Spirit day (Blue/Gold)

Best Buddy Walk Ever!

Posted by on Oct 7, 2014 in Activities, Buddy Walk | 0 comments

Thank you for the Best Buddy Walk Ever!

If you couldn’t join us last Sunday, then you missed out on a fabulous day!

The weather was perfect, music kept us moving, lunch was yummy and the inspiration and fun was over the top!

Thank You for everyone that attended, donated, sponsored, volunteered or just supported our 2014 Buddy Walk! It was a huge success thanks to all of you.

~~ This Year’s Wonderful Sponsors ~~

We want to thank our 2014 Buddy Walk Sponsors again! We couldn’t do it without you all!

Epic Sponsors ($2,000 or more) ~

The Partners Group

DeStefano Family Foundation

Jeff and Sandy Jones Family

Portland Firefighters

Abigail McNatt’s Family

Community Sponsors ($1,000 or more) ~

Tom, Mary, Peter and Sarah Lewis

Olson Pediatric Clinic

Sather Byerly & Holloway

Wolfers Heating & Air Conditioning

Ramey Family

Kilpatrick Family

Director’s Mortgage

Stephen’s Place

Friend Sponsors ~

West Coast Event Productions

Zupans Markets Lake Grove

Berkshire Hathaway Home Services Northwest Real Estate

Minuteman Press

Lake Oswego Lions

American Solutions for Business


Conde Law

Gerald and Sarah Bieze

Wizer’s Fine Wines

Michael Paige Photography

Dr. David Cavano, Pediatric Dental Group

Children’s Healing Art Project

Posted by on Oct 7, 2014 in Activities | 0 comments

DSNO Art Club!

All of us had a great time at CHAP – Children’s Healing Art Project this past Saturday creating Bird Masks, Paintings and Feathery Pencils!

CHAP Studio
1920 SE 11th Avenue
Portland, Oregon 97214

Sign up for our newsletter to be informed when our next DSNO Art Club will meet again!

Down Syndrome Network Oregon Loves Joe Donlon – Buddy Walk 2014

Posted by on Sep 29, 2014 in Activities, Buddy Walk | 0 comments

Joe shakes it with the Rio style Samba band Bloco Alegria at this years Buddy Walk.

The Oregon Optimist

Posted by on Sep 25, 2014 in Activities, Down syndrome | 0 comments

2014 Buddy Walk, Down Syndrome Network of Oregon

Written by H. Whisman, Oregon Optimist


Written by H. Whisman, Oregon Optimist

This Sunday, September 28, the Down Syndrome Network of Oregon (DSNO) will host its 2014 Buddy Walk in Millennium Park Plaza to celebrate and support families with loved ones with Down Syndrome.

Lynnette Sander, mother of three, will attend the Buddy Walk with her family for the third year in a row to support her youngest son, Ethan. “We enjoy many aspects of the Buddy Walk. Mostly it is a good time to meet new families and touch base with familiar faces of families in the Down Syndrome community,” she said.

The schedule of events includes pre-walk festivities, the walk itself, lunch, and a dance contest. “The walk is relatively short because everyone walks, including those that have Down Syndrome,” Sander said.

“[The walk] is preceded by a short presentation and music and following the walk are many activities and lunch for the children and families alike. At the walk are many booths with resources for families, including Dr. Pinter, the leading physician from the Down Syndrome Clinic up at OHSU,” she said.

The yearly event is the organization’s only fundraiser. DSNO uses the proceeds to offer programs and services for families supporting loved ones with Down Syndrome. The events provided by DSNO include: Coffee for Moms, Dad’s Dinners, family outings, educational events, and scholarships for the National Down Syndrome Society’s annual conference. The Buddy Walk has generated approximately $54,000 already, and hopes to reach its goal of $70,500 by Sunday.

This fundraiser is designed to promote awareness of the Down Syndrome community. When registering for the walk, members can create Buddy Pages, which are profiles that introduce participants to one another as well as promote sponsorship from family and friends. The walk is designed to promote a sense of community.

“I think the best thing about getting the community involved in these events is the awareness that is raised, not only about Down Syndrome, but about disabilities in general,” Sander said.

“There are so many disabilities out there and each one brings its own preconceived notions and prejudices. Events like these show people that these disabilities don’t define the person, but rather each person with a disability is uniquely gifted to … the best life for them in spite of their disability,” she said.

DSNO is a faith-based, non-profit organization that unites parents and families of children with Down Syndrome to share experiences and support one another.

“I found the DSNO website and sent an email telling our story of Ethan’s birth and that while not surprised he had Down Syndrome, we were a little overwhelmed. Within a day, I had been called by both of the founders of Down Syndrome Network of Oregon to welcome us to the community,” Sander said.

To donate to DSNO or to sponsor a Buddy, follow this link.

Read the article at The Oregon Optimist.

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