Lights Up, Sound Down

Posted by on Jan 26, 2016 in Activities | 0 comments

Screen Shot 2016-01-26 at 1.51.48 PMFor those of you that don’t know much about our Lights Up, Sound Down movies, we rent out a local movie theater, turn the lights up and keep the sound down for a more sensory friendly environment and invite families in the community to enjoy a free movie. It’s by far our most popular event!

MassMutual Oregon’s SpecialCare Planning Team Invites you to a SENSORY FRIENDLY SCREENING OF KUNG FU PANDA 3!

WHEN: Saturday, February 13th, 2016
Doors open at 9:30
7329 SW Bridgeport Road
Tigard, Oregon 97224
Auditorium 6

I really appreciate the partnership we have with DSNO, so I wanted to give your families the first opportunity at attending! It usually fills up in a matter of days.



National Down Syndrome Adoption Network (NDSAN): An Introduction

Posted by on Jan 19, 2016 in Uncategorized | 0 comments

What is the National Down Syndrome Adoption Network?


All children benefit from the opportunity to grow up in a loving family, but not all birth families feel they are able to meet the needs of a child born with Down syndrome.

The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child. Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families.

The NDSAN is also there to provide support to families who wish to adopt a child with Down syndrome.

There are no fees for any of the services provided by the National Down Syndrome Adoption Network.

Their mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving family.

To learn more about the NDSAN, download their brochure.

DSNO & Its Volunteers Help Change Lives

Posted by on Jan 13, 2016 in Activities, Down syndrome, Parents | 0 comments

Our goal is to support families, friends and individuals with Down syndrome through small gatherings, family outings, providing educational scholarships and attending regional/national events.

While the funds raised through our fundraisers and generous benefactors provide valuable financial support for our programs and services; we pride ourselves on the members of this community who give their time and dedication to our kids. It is only by the virtue of our fantastic volunteers that DSNO continues to be an incredible organization.

This I Believe

Posted by on Jan 13, 2016 in Activities, Down syndrome, Parents | 0 comments

Dear Families at DSNO,

When my daughter Megan was born, my biggest fear is that she would have no friends. I could not think of anything worse. To go though life alone; no playdates, no birthday parties and the worst vision of all, sitting alone at the lunch table at school. Each educational level had it’s own fears – grade school, junior high and high school, but our experience at Our Lady of the Lake was so loved filled, thanks to the parents, teachers and children such as the one you are about to see in this video.

After leaving the cocoon of OLL, I was petrified to begin Lake Oswego High School. But Megan, Eli and the rest of their friends were accepted and loved by the student body. BUT WHY? Yes, we love them so much and see what they have to offer the world, but why would any typical16 year old feel the same way without knowing our kids. Enter Julianna Ramey. She made it her personal mission to introduce Megan and Eli and friends to LOHS. Coach Eric said Megan, Eli and David could be in the cross country team, but needed someone to come to practice everyday and run with them. Julianna did this for Megan every day. She organized a flag football game between our challenger athletes and the Lake Oswego High School Football team. It was a blast.

This remarkable young woman invited Megan and her date, Eli, to sit with their Homecoming group at Manzanas and ride to party bus up to the high school. Winter formal was the same way. The two of them were invited to the preparty at a beautiful home in West Linn and dinner at the Oregon Country Club. The list goes on and on. Julianna was raised to live like Christ and celebrate and honor the least among us, EVERY DAY and in many many ways.

It is impossible to thank Julianna for what she has given me – it’s is priceless. But she is not in it for the thanks. She is in it because she loves.

Oh and those fears I had …. long gone

2016 Dance Class at Innovative Dance!

Posted by on Jan 4, 2016 in Activities | 0 comments

innovative dance

Come join us for our Special Needs Dance Class at Innovative Dance!

Our class is for kids who love to dance that need some extra support! This class recognizes that all children grow and develop at different paces. It is designed to invite children with special needs into the world of dance. Classes will be structured to support a variety of dance disabilities including, but not limited to: AD/HD, autism, spectrum disorder, learning and communication disability, and Down syndrome.

About the Class

The class will run for 45 minutes in ten-week sessions. Kids will be learning basic dance technique involving ballet and jazz as well as developing rhythm, imitation, social skills, taking turns and sequencing in a fun and supportive environment! This class is for kids who do not need one-to-one assistance.

$135 for each ten-week session.

Please register online at

Coming up 2016 sessions:

10 Week Session: Jan. 9 – Mar. 12

Time: Saturdays, 11:00-11:45am

Location: Innovative Dance Studio
30625 A SW Boones Ferry Rd.
Wilsonville, OR 97070

(503) 570-8858

If you have any questions/concerns or would like to meet in person, please contact Samantha directly via email at

Ore. girl with Down syndrome changing the face of modeling

Posted by on Oct 20, 2015 in Down syndrome, Press & Media | 0 comments

Ore. girl with Down syndrome changing the face of modeling

AURORA, Ore. — Ellie Stafford, 2, is a natural in front of the camera

If there’s one pointed at her, she doesn’t need prompting to flash a big, toothy grin.

Ask her for her modeling pose, and she tilts her head slightly to the side, raises shoulder and brings an index finger to her cheek.

Ellie, of Aurora, also has Down syndrome and she has just begun her modeling career.

Despite Ellie’s charisma and friendliness with the camera, her mother, Tiffany Stafford, never considered her daughter for a career in child modeling.

Watch the Full Interview Here: (more…)

Global Down Syndrome Foundation Adult Medical Care Center Survey

Posted by on Jun 12, 2015 in Down syndrome, Global Down Syndrome Foundation | 0 comments

I am writing to request your participation in an important research project.

The Global Down Syndrome Foundation wishes to gather information in order to open their first Adult Down Syndrome Medical Center, which will be located in Colorado. It will be the first of its kind within a 600-mile radius of Denver.

Global has created a Task Force made up of many renowned medical professionals, activists, and self-advocates from across the country to help them establish this world-class medical center for adults with Down syndrome. Part of the Task Force’s recommendation is to get input from self-advocates and their families. To this end, Global has engaged Catalyst Healthcare Research to conduct a survey regarding the healthcare needs of adults with Down syndrome. (more…)

El Global Down Syndrome Foundation Formulario Del Centro Médico Para Adultos

Posted by on Jun 12, 2015 in Down syndrome, Global Down Syndrome Foundation | 0 comments

Estoy escribiendo para pedirle su participación en un proyecto de investigación importante.

El Global Down Syndrome Foundation desea reunir información para lograr abrir el primer Centro Médico Para Adultos Con Síndrome De Down, el cual será localizado en Colorado. Sera el primero de su tipo en un radio de 600 millas de Denver.

Global ha creado un grupo compuesto de varios médicos profesionales reconocidos, activistas, y abogados de todo el país para ayudar a establecer este Centro Médico de clase mundial, para adultos con síndrome de Down. A recomendación de este grupo, estamos buscando la aportación de personas con síndrome de Down y sus familiares. Con la ayuda de Catalyst Healthcare Research, se ha creado un cuestionario con respecto a los cuidados médicos necesarios para los adultos con síndrome de Down. (more…)

Mom’s Coffee – Vancouver

Posted by on Oct 16, 2014 in Activities, Mom's Coffee, Parents | 0 comments

Mom’s Coffee in Vancouver is open to anyone with a loved one who has Down syndrome. All ages of children welcome!!

Enjoy some coffee, water and some snacks. Make new friends, see old friends, laugh, learn or just simply take a break from Dr. Appointments.

Check out the EVENTS CALENDAR for future Mom’s Coffees!

Megan Schiedler Homecoming Princess

Posted by on Oct 16, 2014 in Activities, Parents | 0 comments

Megan Schiedler Crowned Homecoming Princess
Lake Oswego High School!


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