Born EXTRAordinary

Team Born Extraordinary is celebrating new families joining The Lucky Few! This group of amazing kids 0-3 and their families have had a diverse and extraordinary first few years of life, from prenatal and birth diagnoses, health challenges and triumphs, to milestones and therapies, surgeries and celebrations, and most importantly learning how lucky we are to have this extra chromosome! One thing we all have in common is that we celebrate daily the arrival and journey our little ones are taking us on.

Please consider donating to and/or joining us for the DSNO Buddy Walk this year! DSNO has brought an amazing community to Adelie, Adalynn, Isabella, Wesley, Everett, Lucie, Parker, and Cecelia.

Meet: Adalynn Joy
Age: 15 months

Adalynn Joy is a sweet 15 month old! She loves her big brother and sister, her dogs, dancing, and playing in water!

We found out Addy had DS during pregnancy, and she was born healthy as can be. At 5 months old she became very sick, and spent the next several months in the picu fighting for her life. She kicked its butt, and came out even sweeter and stronger. She is fiery, resilient, and so silly and loved by everyone that meets her.

Meet: Isabella Belen aka Bella
Age: 2 years

Bella loves playing ball, dancing, music and giving everyone hugs. She especially loves her sisters, Angela (4 yrs) and Lucia (10 months). We found out that Bella had an extra chromosome during our first trimester of pregnancy. Bella has overcome spinal cord surgery and is recently recovering from surgery to help with swallowing difficulties. Bella has found a unique way to booty scoot to keep up on our family adventures. She is a great traveler and enjoys road trips, camping, and hiking.

Meet: Wesley
Age: 1 year

Hi, I’m Miranda and this is Wesley! He just turned one! At our 20 week ultrasound, he had several markers, and that indicated a possible down syndrome diagnosis. It was confirmed after he was born.

Wesley was born with a hole in his heart, which has been closed up on its own. He loves talking, avocado, scrambled eggs, and dancing! He loves his big sissy, Georgia and his daddy Mitchell. We have a little farm with cows, chickens, dogs, and cats, which Wesley loves! Our nickname for Wesley has been buddy from day one, which is his great grandpa’s name. He is the happiest, baby I know, and I’m blessed to be his mama!

Meet: Parker
Age: 15 months

Parker loves singing songs (especially the itsy bitsy spider), waving at everyone he sees, reading books, swimming, and intently observing the world around him. His favorite food is cheesy scrambled eggs. Parker lives with mom, dad, and fur sister, Midge.
Parker surprised us with a birth diagnosis. Since the day we met him, he has provided more love than we ever thought was possible!

Meet: Lucie G.
Age: 12 months

Lucie loves music, food, cuddles, toys, dogs and cats, splashing in the bath or pool, and most of all, playing with her big sister. Her family learned that she would have Down syndrome before she was born. She is loving, strong and determined, and is SO incredibly loved and celebrated every day.

Meet: Adelie Wilder
Age: 18 months

Adelie loves people, music, dancing and playing with her two older brothers. Adi was diagnosed with Down Syndrome at 4 weeks old. At 6 weeks she got sick with RSV and spent 30 days at OHSU.

At 7 months old she had open heart surgery. She is a warrior and has a pacemaker to boot! Her favorite meal is steak and mashed potatoes

Meet: Everett
Age: Almost 2

Everett loves dogs and ducks, saying woof and quack, playing at his water table, reading books, going camping and to the park. He gets to spend a lot of time with his extended family (great grandparents, aunts, cousins) which he loves. We learned he would have Down Syndrome before birth. Everett needed oxygen and a feeding tube for awhile at first but now is tube free. He is working on learning to walk and doing a great job catching on to using a walker. He lives with mom, dad and fur-sister Penny. He is full of energy, driven, greets everyone with a smile. We love him dearly, he made our world better than ever could have imagined and we’re excited for his future adventures and memories we’ll make as a family

Meet: Cecelia aka Cece
Age: 2 years 8 months

Cece loves to sing, listen to music, climb obstacles, eat food, explore outside, and play with her big brother. Her family learned of her diagnosis prenatally and she was born happy and healthy. Cecelia developed hearing loss the first year of her life but has been learning sign language and is thriving. Cecelia is loved by everyone who meets her. Her smile is contagious, her courage is immense, and her tenacity is something to aspire to.